Above – the peaceful Urnenfriedhof Gerichtstrasse in Wedding, Berlin
Due to horrendous levels of acne on my face that appeared during Xmas and beyond I’ve decided to stop taking the Boswellia Serrata clinical trial medicine. This is a shame as it did seem to be having quite a few positive results. My short term memory and concentration levels have improved, as have my energy levels. However, my face was a mess. . .
Apparently, this pretty major side effect has been seen in other trial patients and the NeuroCure doctors agree with me that a different form of treatment should be looked at. The positive benefits are pretty pointless if I’m uncomfortable showing my pizzary visage around!
Anyway, after being off it for nearly 2 weeks it has cleared up considerably. So there’s little doubt that it was the treatment that was having this detrimental effect on the skin.
One drug that has just received EU-wide acceptance is known as Tecfidera. (Although not on the UK NHS as yet…) This is an oral treatment again (so no needles!) and has shown a pretty successful rate of minimising relapses and lesion growth. The drug has been used for nearly a hundred years in Germany for psoriasis treatment so perhaps it can also help my skin out! The general plan at the moment is to wait for another 4 weeks to be sure that the Bos is out of the system and then hopefully try the Tecfidera…
Whatever happens I’m very positive and – teenage face aside – have had no symptoms of anything else worthy of note.
So, I started my clinical trial of Boswellia Serrata (frankincence) last week. It was an extra long day at the Charité , which left me feeling exhausted but confident in the ongoing handling of my condition. After 2 (count em! Er, 1, 2…) MRI scans, a motion capture research scheme and the usual tonnage of questionnaire forms and tests, I was off, big box of Boswellia capsules in hand.
After a week on the gradually increasing dosage of the treatment I feel fine. No major ups or downs. My sleeping patterns are still a bit disturbed and I still have some pretty bad stress related acne, but apart from that I have no real symptoms of anything too much. A week is probably too early to say in terms of memory/mental effects, but I certainly feel quite positive.
I’ll continue to write weekly updates throughout this trial.