Monthly Archives: April, 2013

The Road Ahead – MS Treatment Options

Image

I finally had a second consultation with my neurologist in Berlin yesterday. I say *finally* because the various toing and froing with the health insurance providers took rather a long time (about 2 and a half months) to sort out. Anyway, it has been done now and we were able to sit down and discuss the route ahead for me in regards to my MS.

Ever since the diagnosis was given to me back in October 2012 (in the UK) it has been in the back of my mind that injectable drugs may be required in my treatment schedule. This almost certainly would have been the case if was being treated in the UK. I was not very comfortable with the idea of a daily or weekly injecting schedule – although of course I would have subscribed to it if my symptoms were getting noticeably worse. Thankfully, they have not significantly (despite the looong Berlin winter, now over!). My gait is still a bit uneven and right hand and right foot are slightly numb in the early morning, but this has not changed in over a year.

Linked to my unease of injections is that the percentage of MS patients who do not complete injectable treatment is substantial; the constant reminders of one’s condition, combined with the discomfort and skin markings of injections is of course, not the most attractive of possibilities.

This is why I decided with the neurologist that the best option for me would be to take part in a clinical trial of a new oral drug awaiting patent based on a chemical compound found in (the old Testament favourite and exotic incense) the Frankincense resin of the Boswellia tree.

Following 2 nights in hospital in May, having scans and a spinal tap (not hanging out with the band, unfortunately), I’ll start on this course and see how it goes…

Springing Forward

Image

There is no hiding from the light

Or the facts that surround us;

The blocks and the pieces

For us creatures and species

Number one:

We are all still animals like it or not

The chemicals react

Whatever we’ve got

A palace in the ice

Or a hut in the sun

Our beliefs may have changed

But not our fun!

Knightriders … George A. Romero and knights on bikes …

Knightriders

 

My review of George A. Romero’s 1981 ‘personal project’ Knightriders is over at Memorable TV

Beautiful Creatures – out now in Germany

Image

My review of this poor-show is over at ExBerliner and below…

This book adaptation ticks all the requisite fantasy emo-boxes in a love story between small town Southern boy Ethan and his mysterious flame Lena. Stilted conversation, faraway looks, turgid symphonic rock soundtrack, Gothic interior? Check ‘em all and add overlong, meandering, frequently tiresome. The old-school ham of Irons and Thompson liven up proceedings, but otherwise this is a good looking but decidedly damp squib.

Reality of MS

Trevis L. Gleason is a terrific writer and advocate of MS sufferers. I felt I had to post a link to an article he wrote on the American National MS Society’s blog. He is basically talking about the distrust many can feel about the condition and that sufferers are ‘putting it on’ or exaggerating the difficulties involved in living with MS. Here, he takes it on in fine style, describing his own experiences and urging a greater understanding from friends, colleagues and the wider world…